1:45pm: Reid had a pretty quiet night last night and was weaned down to mean pressure of 24. His xrays from last night didn't show any movement of the cysts so we were relieved to hear that. His right lung looked like it had opened up a little more as well. All positive news.
After yesterday, the orders have been rewritten to be very clear. Reid is to be weaned on a precise schedule and to not deviate from it. The doctors are to be made aware before he is weaned. This way, we feel there are less cooks in the kitchen and maybe more control. Reid had a minor desat this morning during trache care and went down to 87. He recovered on his own but goes to show you how little he likes to be touched right now. During his care, they noticed the stitches looked a little odd, so they are going to have wound care stop by this afternoon to take a look.
We went home this morning and tried to have a somewhat normal start to our day. I was able to get a few things done around the house (mowed lawn) as we have been neglecting some of our other responsibilities. Bills got paid as well, so we are good for a little while at least. We are heading back to the hospital here shortly to hang out with Reid. I need to get some work stuff done this afternoon, so the laptop will be fired up at some point. We are hanging in there and when it feels like we have given all we have and our bodies are drained and our emotions have taken a toll on us mentally, we know that Reid is not giving up - we have to remain just as strong as our little fighter is - if not more.
We are not giving up either Kristen! Lots of love from the NICU- Melissa
ReplyDeleteGlad to hear that Reid's hanging in there. You guys are continually in my thoughts and prayers. I'm checking to blog every couple hours for updates. You guys are so strong and so brave. Hang in there. FYI, Luke still desats 5-15 points when we do trach care. It's just flat an uncomfortable thing to endure (for all involved), so don't let the desats (during trach care/change) bother you too much. When Luke was really sick, we used to up his O2s for a few minutes during trach care to give him a boost. Just a thought. Love and prayers for you guys.
ReplyDeleteThrough trust of love and prayer and hope and will, we have to know that Reid is strong because he has parents like you, Kristen and Chad. We love you and are fighting along the battle along the way for Reid! Con Dios mis amigos amores!:o)
ReplyDeleteWell said!! He is not giving up because he has you guys to love him and give him all the strength he needs to keep fighting. Even though he is sedated, somewhere inside he is very aware of you and the unconditional love you are giving to him. He is just as aware of how hard you are fighting right along side him! Keep up the excellent work mom and dad!!
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