12:45pm: Today is the last time I will make an entry to this blog. I did't feel that it was appropriate to keep blogging in Reid's journal, so I have created a new site to move forward with. This blog will remain active, but new posts will be made to the following address:
http://theelleyfamily.blogspot.com
See you there.
Thursday, July 15, 2010
Thursday, June 24, 2010
11:30pm: Kristen and I got out of town this week and headed to the beach (Seaside, FL). We rented a one bedroom house across the street from the beach and have enjoyed being away from everything. While the beach has had some tar balls wash up from the BP oil disaster in the Gulf, the sand and water, for the most part, are clean and clear. The crews are right on top of everything - so that is good to see. Honestly though, we really haven't spent much time on the beach itself - it is way too hot (heat index of 100 and humidity so thick you can cut it with a knife) - so, we have found one of the three pools in the community to be fairly quiet and relaxing. I have been working a little while we are here - I have put in a few hours each day and am trying to work myself back into the routine. Next week, I will be back 100% and I am not looking forward to it at all. My work has been extremely flexible so I am more than grateful that they have accommodated me. Kristen has enjoyed her time down here - mostly playing scrabble on her iPhone and reading her Kindle. Her tan is also in full gear! :)
I think we are getting close to being ready to go home - not necessarily back to reality, but to the comforts of home. We are heading back on Saturday and we are anxious to visit Reid.
Our friend Shay took her son Aidan to visit Reid twice this week. They live no more than a couple of miles from the cemetery and pass it regularly, so it is good to have 'neighbors' to watch over Reid while we have been gone. Aidan, who is 5 years old, brought him a yellow and black matchbox race car and a small plant - "... a small plant 'cause Baby Reid was small". Aidan has also enjoyed talking to Reid and has told Reid all about his day. He apparently said that it was so hot out in Atlanta today that Reid was probably swimming in heaven. And even though he is an angel, he still had to stay out of the deep end! How priceless is that?!? Kids say the darnedest things and it brought a much needed smile to my and Kristen's face. Indeed, Reid is smiling too - and swimming as fast as he can with his new set of lungs.
Sunday, June 20, 2010
7:30pm: Kristen and I picked up a new bouquet of flowers for Reid this morning and we stopped by for a short visit. I think we would have stayed longer but the weather was already in the 90s with very little wind - blazing hot for me. Its been an interesting day for me - everyone keeps telling me Happy Father's Day - but it is everything but happy. I am blessed to have been a father, but all I envision today are fathers spending time with their kids... something I didn't get to do.
Anyway - nothing big to post today, just wanted to get a few pictures up here of Reid's grave:
12:30am: Kristen and I made a trip to the cemetery to visit Reid today. It was the closest I have felt to him over this past week, so I imagine that we will be trying to make frequent trips. We laid down in the grass next to his grave for about 30-45 minutes... somehow the 90ish degree temperature had subsided while we were there and I joked that Reid had put a word into the man upstairs to cool it down and let there be a gently breeze. Reid and I are very hot natured people - so the cool air that seemed to be blowing by was quite pleasant.
We mostly talked about how bad we missed him, how difficult of a life that he had in his short time on earth, and the things we, as parents, will miss out in life. Kristen sang a couple of songs to him and choked back tears. We will be back tomorrow to lay a new set of flowers on his grave for Fathers Day - the ones that were placed the day of his burial have all but wilted. Someone had also placed a teddy bear on his grave, so that was nice to see as well.
The entire set of family and friends that we have had visiting over the past week have all left today. The house is empty and Kristen and I did everything possible to not be at home tonight. Just when things seem to be manageable and you think you have your emotions in check, it is if something jumps up and bites you and you struggle to keep your stomach from turning inside out. Tears roll down your face at random times and when you least expect them to. I guess this is part of the healing of our fresh wounds and it scares me to think about how long we are going to go through this roller coaster ride. If we ever thought the journey through the NICU was tough - we are in for it.
Anyway - nothing big to post today, just wanted to get a few pictures up here of Reid's grave:
12:30am: Kristen and I made a trip to the cemetery to visit Reid today. It was the closest I have felt to him over this past week, so I imagine that we will be trying to make frequent trips. We laid down in the grass next to his grave for about 30-45 minutes... somehow the 90ish degree temperature had subsided while we were there and I joked that Reid had put a word into the man upstairs to cool it down and let there be a gently breeze. Reid and I are very hot natured people - so the cool air that seemed to be blowing by was quite pleasant.
We mostly talked about how bad we missed him, how difficult of a life that he had in his short time on earth, and the things we, as parents, will miss out in life. Kristen sang a couple of songs to him and choked back tears. We will be back tomorrow to lay a new set of flowers on his grave for Fathers Day - the ones that were placed the day of his burial have all but wilted. Someone had also placed a teddy bear on his grave, so that was nice to see as well.
The entire set of family and friends that we have had visiting over the past week have all left today. The house is empty and Kristen and I did everything possible to not be at home tonight. Just when things seem to be manageable and you think you have your emotions in check, it is if something jumps up and bites you and you struggle to keep your stomach from turning inside out. Tears roll down your face at random times and when you least expect them to. I guess this is part of the healing of our fresh wounds and it scares me to think about how long we are going to go through this roller coaster ride. If we ever thought the journey through the NICU was tough - we are in for it.
Thursday, June 17, 2010
8:00pm: Somehow we managed to get through the day - I am not sure how, but I am sure it had something to do with the fact that we had so many family and friends with us. Reid had a purpose in life - and while we may never know the full extent of that purpose, it was clear today by the outpouring of support that we heard and saw, Reid touched many peoples lives.
Everything is still so surreal and I am not sure the enormity of this week has really had a chance to sink in. Our lives will somehow continue to move forward and we will eventually heal - but, as I told Kristen today, we are going to have many more rocky days before the good ones start to come around again. Our lives will be forever changed, but the immediate change has already started to show its face. As busy as we have been this week, our day's load seems to be lighter and less worrisome and the things that we used to fill our day with are now being filled with other activities.
And when I think of the new voids in our life with Reid's passing, one thing struck me in Reid's service this afternoon. Part of our daily routine (more Kristen than mine), was to call and see how our little man was doing. One of our primary nurses from Egleston, Bethany, finished off her tribute to Reid by talking about how we would call late night or early morning to get an update on how Reid's night had gone. While we don't have to make that call anymore, we were able to get one last update from Bethany on how Reid was doing... and I quote:
"Well, Reid had a good night last night
In fact, he didn't cry at all
They discontinued all his medicines and decided
we don't need to do any more procedures
It doesn't look like he's in any pain
He's been cooing and laughing like you wouldn't believe!
He is finally on "room air" and
He doesn't need his boppy or his swing because
The One who loves him more than we can imagine
is holding Reid in His arms today."
When things are put in that light, things aren't so bad. Reid is in the best hands and we can't have it any better than that.
Everything is still so surreal and I am not sure the enormity of this week has really had a chance to sink in. Our lives will somehow continue to move forward and we will eventually heal - but, as I told Kristen today, we are going to have many more rocky days before the good ones start to come around again. Our lives will be forever changed, but the immediate change has already started to show its face. As busy as we have been this week, our day's load seems to be lighter and less worrisome and the things that we used to fill our day with are now being filled with other activities.
And when I think of the new voids in our life with Reid's passing, one thing struck me in Reid's service this afternoon. Part of our daily routine (more Kristen than mine), was to call and see how our little man was doing. One of our primary nurses from Egleston, Bethany, finished off her tribute to Reid by talking about how we would call late night or early morning to get an update on how Reid's night had gone. While we don't have to make that call anymore, we were able to get one last update from Bethany on how Reid was doing... and I quote:
"Well, Reid had a good night last night
In fact, he didn't cry at all
They discontinued all his medicines and decided
we don't need to do any more procedures
It doesn't look like he's in any pain
He's been cooing and laughing like you wouldn't believe!
He is finally on "room air" and
He doesn't need his boppy or his swing because
The One who loves him more than we can imagine
is holding Reid in His arms today."
When things are put in that light, things aren't so bad. Reid is in the best hands and we can't have it any better than that.
Sunday, June 13, 2010
Reid Phillips Elley, born 2 September 2009, in Austell, GA, was called home to the Lord on 13 June 2010. After nine months in the hospital, Reid lost his courageous fight and was overcome by the challenges of a premature birth. Reid’s presence was all too brief but he brought joy and courage to his family and loved ones each day he was with us. Reid is survived by his parents Chad and Kristen Elley, Smyrna, GA; grandparents Ben & Georgia Elley, Sunset, SC, Bill and Carol Hart, Woodlands, TX, and John Bell, Leavenworth, KS; Great grandmother Maxine Hinton, Manhattan, KS; Aunts and Uncles Todd and Jennifer Williams of Atlanta; Brian and Shannon Pagel of Alpharetta; David and Erica Mills, San Antonio, TX; Laura and Rocky Rosenberg, Poulsbo, WA; Bob and Kerryellen Hart, Savannah, GA; Amy Hart, Austin, TX; Great Aunts and Uncles George and Nicole Elley, Tempe, AZ; Tom and Debbie Phillips, Manhattan, KS; and numerous cousins. Services will be held on 17 June 2010 at 1pm at the Davis-Struempf Funeral Home in Austell, GA. Visitations will be held from 11am to 1pm. In lieu of flowers the family has requested donations to Children’s Healthcare of Atlanta in memory of Reid Phillips Elley. Donations may be mailed to Children’s Healthcare of Atlanta, Attention: Steven Wagner, 1687 Tullie Circle NE, Atlanta, GA 30329.
5:30pm: We will be holding a visitation between the hours of 11am and 1pm on Thursday, June 17th at the Davis-Struempf Funeral Home in Austell, Georgia. At 1pm, a funeral service will commence. Following the service, there will be a grave-side burial service (site yet to be determined) and we will be hosting an open house for those that wish to join us afterwards.
Davis-Struempf Funeral Home
1975 East-West Connector
Austell, GA 30106
770.994.2900
www.davisstruempf.com
In lieu of flowers, donations can be made to Children's Healthcare of Atlanta, where we have set up a fund that will be directed specifically to the Neonatal Intensive Care Unit in Reid's name. Please send donations to the following address and be sure to include Reid's name.
Children’s Healthcare of Atlanta
Attention: Steven Wagner
1687 Tullie Circle NE
Atlanta, GA 30329
You may also go to www.choa.org and donate online. You will be able to donate in Reid's name there as well.
Chad and Kristen Elley
4930 Durley Lane
Smyrna, GA 30082
8:00pm: Two hundred and eighty five days have passed since Reid graced us in September with his early announcement into this world. Unfortunately, it is with a heavy heart that I have to inform you that Reid lost his battle today. Our little man gave everything that he had and he has taught us some valuable lessons in life - the most important of all - to never give up. When doctors, nurses and therapists repeatedly told us that the odds were stacked against us, Reid always found a way to prove them wrong. Today, Reid didn't give up. The body that carried his spirit gave up. He could take no more.
Reid was surrounded by the closest of family and friends today as Kristen and I made the most difficult decision of our life - to let him go. His body, bearing the numerous battle wounds he had endured in the past 9 months, couldn't take it any more and we couldn't selfishly keep him here for ourselves.
He went peacefully and has gone home.
Kristen and I no longer fear death. We anxiously await the day that we meet him again in the glorious kingdom of heaven - where we will find our little boy picking up frogs, digging up worms and doing all of the things that little boys do.
This closes a chapter of our lives that wasn't ready to be closed. We are empty and lost but we will find our feet again. And we will find them again with the support that we have in each one of you. While we have our core group, there are many of you out there that we have never met that sent your prayers our way. We thank every one of you and we couldn't have made it this far without you. As I sign off for tonight, I request that each and every one of you please post a comment - even if it is as simple as writing your name. We have 40+ followers on this blog but know there are many, many more of you out there and we would appreciate it if we can know who was cheering Reid on from the sidelines.
9:30am: Around midnight last night, Reid's saturations started to fall and his CO2 and pH levels started to go in the wrong direction. They decided to go down on the hertz on the oscillator to 7 (from 8) to help pull off some of the excess CO2. After what seemed to be about 30 minutes after the orders were made, the respiratory therapist finally came in and made the change on the hertz, but also did something that she wasn't supposed to do without doctors orders - go up on the mean pressure. She took Reid from 22 (which was our landing point) back up to 25. As soon as I saw her do this, I went out in the hallway and asked to speak to the doctor. This was against the plan and is pissed me off.
We had a 20 minute conversation with the doctor to tell him how frustrated we were and that we didn't know where we were going. When he saw what had happened, he was equally frustrated and said that we will have to work on weaning it all over again. He even commented to the fact that he was happy with the progress that Reid had made during the 18 hours that the doctor had been here... and that it had all been thrown out the window with the mean pressure increase. His last words as he walked out the door was that he was going to have to have a 'talk' with the therapist.
Fast forward to this morning, the hertz was lowered again to 6 (lowering is actually increasing) as his CO2/pH balance was still not where they wanted it to be. In addition, they went back up on the Nitric Oxide from 4 to 5.7 PPM - even though they aren't confident that it is even doing anything for Reid. His sats yesterday hovered in the 90-92 range but today when we walked back in the room this morning, they were 96. His latest CO2 was 63 and a pH of 7.33 --- good for Reid.
Kristen and I both noticed that he looked really puffy today and appears that he is retaining a lot of fluids. As of about 30 minutes ago, they started a dose of lasix to see if that can clear off some of the excess. His morning xray showed some increased haziness in his lungs - which usually equates to fluids. So, we are hopeful that this will help him out.
We are worried about how long he has been on this level of support. Obviously being on artificial support for extended periods of time is not good - Nitric Oxide, over a period of time is toxic; over-extending your lungs is not good either. The uncertainty of it all is killing us, but we are quickly approaching 2 weeks since surgery.
5:30pm: We will be holding a visitation between the hours of 11am and 1pm on Thursday, June 17th at the Davis-Struempf Funeral Home in Austell, Georgia. At 1pm, a funeral service will commence. Following the service, there will be a grave-side burial service (site yet to be determined) and we will be hosting an open house for those that wish to join us afterwards.
Davis-Struempf Funeral Home
1975 East-West Connector
Austell, GA 30106
770.994.2900
www.davisstruempf.com
In lieu of flowers, donations can be made to Children's Healthcare of Atlanta, where we have set up a fund that will be directed specifically to the Neonatal Intensive Care Unit in Reid's name. Please send donations to the following address and be sure to include Reid's name.
Children’s Healthcare of Atlanta
Attention: Steven Wagner
1687 Tullie Circle NE
Atlanta, GA 30329
You may also go to www.choa.org and donate online. You will be able to donate in Reid's name there as well.
Chad and Kristen Elley
4930 Durley Lane
Smyrna, GA 30082
8:00pm: Two hundred and eighty five days have passed since Reid graced us in September with his early announcement into this world. Unfortunately, it is with a heavy heart that I have to inform you that Reid lost his battle today. Our little man gave everything that he had and he has taught us some valuable lessons in life - the most important of all - to never give up. When doctors, nurses and therapists repeatedly told us that the odds were stacked against us, Reid always found a way to prove them wrong. Today, Reid didn't give up. The body that carried his spirit gave up. He could take no more.
Reid was surrounded by the closest of family and friends today as Kristen and I made the most difficult decision of our life - to let him go. His body, bearing the numerous battle wounds he had endured in the past 9 months, couldn't take it any more and we couldn't selfishly keep him here for ourselves.
He went peacefully and has gone home.
Kristen and I no longer fear death. We anxiously await the day that we meet him again in the glorious kingdom of heaven - where we will find our little boy picking up frogs, digging up worms and doing all of the things that little boys do.
This closes a chapter of our lives that wasn't ready to be closed. We are empty and lost but we will find our feet again. And we will find them again with the support that we have in each one of you. While we have our core group, there are many of you out there that we have never met that sent your prayers our way. We thank every one of you and we couldn't have made it this far without you. As I sign off for tonight, I request that each and every one of you please post a comment - even if it is as simple as writing your name. We have 40+ followers on this blog but know there are many, many more of you out there and we would appreciate it if we can know who was cheering Reid on from the sidelines.
9:30am: Around midnight last night, Reid's saturations started to fall and his CO2 and pH levels started to go in the wrong direction. They decided to go down on the hertz on the oscillator to 7 (from 8) to help pull off some of the excess CO2. After what seemed to be about 30 minutes after the orders were made, the respiratory therapist finally came in and made the change on the hertz, but also did something that she wasn't supposed to do without doctors orders - go up on the mean pressure. She took Reid from 22 (which was our landing point) back up to 25. As soon as I saw her do this, I went out in the hallway and asked to speak to the doctor. This was against the plan and is pissed me off.
We had a 20 minute conversation with the doctor to tell him how frustrated we were and that we didn't know where we were going. When he saw what had happened, he was equally frustrated and said that we will have to work on weaning it all over again. He even commented to the fact that he was happy with the progress that Reid had made during the 18 hours that the doctor had been here... and that it had all been thrown out the window with the mean pressure increase. His last words as he walked out the door was that he was going to have to have a 'talk' with the therapist.
Fast forward to this morning, the hertz was lowered again to 6 (lowering is actually increasing) as his CO2/pH balance was still not where they wanted it to be. In addition, they went back up on the Nitric Oxide from 4 to 5.7 PPM - even though they aren't confident that it is even doing anything for Reid. His sats yesterday hovered in the 90-92 range but today when we walked back in the room this morning, they were 96. His latest CO2 was 63 and a pH of 7.33 --- good for Reid.
Kristen and I both noticed that he looked really puffy today and appears that he is retaining a lot of fluids. As of about 30 minutes ago, they started a dose of lasix to see if that can clear off some of the excess. His morning xray showed some increased haziness in his lungs - which usually equates to fluids. So, we are hopeful that this will help him out.
We are worried about how long he has been on this level of support. Obviously being on artificial support for extended periods of time is not good - Nitric Oxide, over a period of time is toxic; over-extending your lungs is not good either. The uncertainty of it all is killing us, but we are quickly approaching 2 weeks since surgery.
Saturday, June 12, 2010
3:00pm: The oxygen is back up to where it was yesterday and they have the NO down to 5 PPM. This will be weaned over the next 24 hours assuming Reid tolerates it. The doctors don't think this is having much effect on Reid, but they are taking it slow regardless.
He had another desat this afternoon around the same time he does every day (we think it may have something to do with his circadian rhythm). He got as low as 83, but has been coming up since. He is currently satting 91. We have noted a higher heart rate than yesterday - it is around 140 now as opposed to about 110 yesterday. Not sure if the new drug has kicked in or not, but they ended up giving chloral hydrate again to help calm him down. We hope that as his heart rate comes down, his sats go back up.
12:00pm: A new doctor took over today and there is now a new plan of action. It is good to have a new set of eyes, but it is always hard to get used to something different. Over the past few days, Reid has been starting to wake up a little bit at random times of the day and think that he is building a tolerance of the sedatives that he is on. Today, they replaced ketamine with dilaudid, which is stronger and should help him remain 'out'. There have been times when Reid destats and we think it is him waking up and trying to breath against the oscillator. They have been giving chloral hydrate as needed to help out, but the doctors don't like giving this as it is a 'dirty drug'. The new drug should alleviate having to give something extra.
The other change they made today during rounds was to no longer actively wean the O2, but rather wean the Nitric Oxide (NO). He was on the maximum of 20 parts per million (PPM) and they have now weaned to 15. Usually they like to get this out of the way before switching to the conventional vent, so we were surprised the other day when they told us that we would still be on this after the switch. I think this plan is more in line with what we have been told in the past - so we will see. Usually kids have no problem weaning really fast on the NO... that is until they get to about 2 PPM. From there, it usually can take awhile.
9:30am: Another good night for Reid last night. And a solid night of sleep for Kristen and me. His mean pressures are down to 22 where they are going to hold. If they happen to do any more weaning, it might go down to 21, but I think they are at a level where they want to get before switching over to conventional vent. The biggest thing they are going to work on weaning now is his O2.
His CO2 was 37 and a pH of 7.45. The pH was a little high, but still in the acceptable range. If it gets any higher, they are going to wean his "Delta P" which is the "wiggle factor" on the oscillator. The wiggle helps blow off his CO2, which directly effects his pH levels. His body is used to having a higher CO2. His O2 was down to 79% and he was satting in the 97-99 range.
He had another xray this morning at 4 and his left lung looked a lot better to me. His upper lobe looked to be quite a bit more open than it did yesterday. His cysts didn't look like they had grown at all. But this is just my reading and will wait to hear from the doctor later this morning for the official word.
We are moving in the right direction. Slowly but surely. But as the old saying goes, "Slow and steady wins the race".
He had another desat this afternoon around the same time he does every day (we think it may have something to do with his circadian rhythm). He got as low as 83, but has been coming up since. He is currently satting 91. We have noted a higher heart rate than yesterday - it is around 140 now as opposed to about 110 yesterday. Not sure if the new drug has kicked in or not, but they ended up giving chloral hydrate again to help calm him down. We hope that as his heart rate comes down, his sats go back up.
12:00pm: A new doctor took over today and there is now a new plan of action. It is good to have a new set of eyes, but it is always hard to get used to something different. Over the past few days, Reid has been starting to wake up a little bit at random times of the day and think that he is building a tolerance of the sedatives that he is on. Today, they replaced ketamine with dilaudid, which is stronger and should help him remain 'out'. There have been times when Reid destats and we think it is him waking up and trying to breath against the oscillator. They have been giving chloral hydrate as needed to help out, but the doctors don't like giving this as it is a 'dirty drug'. The new drug should alleviate having to give something extra.
The other change they made today during rounds was to no longer actively wean the O2, but rather wean the Nitric Oxide (NO). He was on the maximum of 20 parts per million (PPM) and they have now weaned to 15. Usually they like to get this out of the way before switching to the conventional vent, so we were surprised the other day when they told us that we would still be on this after the switch. I think this plan is more in line with what we have been told in the past - so we will see. Usually kids have no problem weaning really fast on the NO... that is until they get to about 2 PPM. From there, it usually can take awhile.
9:30am: Another good night for Reid last night. And a solid night of sleep for Kristen and me. His mean pressures are down to 22 where they are going to hold. If they happen to do any more weaning, it might go down to 21, but I think they are at a level where they want to get before switching over to conventional vent. The biggest thing they are going to work on weaning now is his O2.
His CO2 was 37 and a pH of 7.45. The pH was a little high, but still in the acceptable range. If it gets any higher, they are going to wean his "Delta P" which is the "wiggle factor" on the oscillator. The wiggle helps blow off his CO2, which directly effects his pH levels. His body is used to having a higher CO2. His O2 was down to 79% and he was satting in the 97-99 range.
He had another xray this morning at 4 and his left lung looked a lot better to me. His upper lobe looked to be quite a bit more open than it did yesterday. His cysts didn't look like they had grown at all. But this is just my reading and will wait to hear from the doctor later this morning for the official word.
We are moving in the right direction. Slowly but surely. But as the old saying goes, "Slow and steady wins the race".
Friday, June 11, 2010
1:45pm: Reid had a pretty quiet night last night and was weaned down to mean pressure of 24. His xrays from last night didn't show any movement of the cysts so we were relieved to hear that. His right lung looked like it had opened up a little more as well. All positive news.
After yesterday, the orders have been rewritten to be very clear. Reid is to be weaned on a precise schedule and to not deviate from it. The doctors are to be made aware before he is weaned. This way, we feel there are less cooks in the kitchen and maybe more control. Reid had a minor desat this morning during trache care and went down to 87. He recovered on his own but goes to show you how little he likes to be touched right now. During his care, they noticed the stitches looked a little odd, so they are going to have wound care stop by this afternoon to take a look.
We went home this morning and tried to have a somewhat normal start to our day. I was able to get a few things done around the house (mowed lawn) as we have been neglecting some of our other responsibilities. Bills got paid as well, so we are good for a little while at least. We are heading back to the hospital here shortly to hang out with Reid. I need to get some work stuff done this afternoon, so the laptop will be fired up at some point. We are hanging in there and when it feels like we have given all we have and our bodies are drained and our emotions have taken a toll on us mentally, we know that Reid is not giving up - we have to remain just as strong as our little fighter is - if not more.
After yesterday, the orders have been rewritten to be very clear. Reid is to be weaned on a precise schedule and to not deviate from it. The doctors are to be made aware before he is weaned. This way, we feel there are less cooks in the kitchen and maybe more control. Reid had a minor desat this morning during trache care and went down to 87. He recovered on his own but goes to show you how little he likes to be touched right now. During his care, they noticed the stitches looked a little odd, so they are going to have wound care stop by this afternoon to take a look.
We went home this morning and tried to have a somewhat normal start to our day. I was able to get a few things done around the house (mowed lawn) as we have been neglecting some of our other responsibilities. Bills got paid as well, so we are good for a little while at least. We are heading back to the hospital here shortly to hang out with Reid. I need to get some work stuff done this afternoon, so the laptop will be fired up at some point. We are hanging in there and when it feels like we have given all we have and our bodies are drained and our emotions have taken a toll on us mentally, we know that Reid is not giving up - we have to remain just as strong as our little fighter is - if not more.
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